Posts Tagged ‘#NPC’

NPRF Funding at De Montfort University, Leicester

A collaboration of funding between the NPRF and Ryklow Charitable Trust supported Simon Wheeler and Dan Sillence at De Montfort University, Leicester looking into the cellular pathology and pharmacotherapy in NPC disease. This successful research has resulted in a paper being published in the Journal of Neurochemistry. To read the paper, please follow the link…

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Day 2 of the Ridgeway Challenge with Ashington Page, Beaconsfield

As a small charity we are eternal grateful to everyone who organises events, raising much needed funds for the NPRF. We are also fortunate that our local community is so amazing and keep rising to various challenges helping us continue to support research. One team doing that is the team at Ashington Page in Beaconsfield…

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Collaboration with Action Medical Research to support The Platt Lab

We are delighted to have joined forces with Action Medical Research (AMR) and other Niemann Pick Charities (Niemann-Pick UK, NP Suisse and Niemann-Pick de Fuenlabrada) to support Professor Frances Platt conduct a project that starts this month and will run for 24 months.  We have made a material contribution to this six-figure fund and are…

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Publication of Copper Trafficking and Redistribution Research

We are delighted to have been involved in part funding this research which involved scientists from 3 laboratories in the UK: Fran Platt’s lab in Oxford providing the biology, John Spencer’s lab in Sussex providing the chemistry and Philip Blower at Kings College London providing the imaging expertise. A great collaboration that has advanced our…

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Universal Care pick the NPRF as their Charity for 2019

A massive thank you to the staff at Universal Care for picking the NPRF as their charity for 2019. We are very grateful to them for their £5,000 sponsorship and the awareness that they are giving us this year.   We hope to soon have news about a funding project that we will use their…

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Scientists Cycle Oxford to Cambridge for Niemann Pick Disease

Congratulations to the amazing team of scientists who have successfully completed their 70 mile cycle from Oxford to the NP UK Family Conference taking place this weekend near Cambridge. Despite the weather testing them once again this year, they have all arrived safely! Thanks to everyone who has supported them already, if you would still…

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Ursodeoxycholic acid treatment in NPC

This is one of the drugs that William has been on for several years now following research that the NPRF funded through the Platt Lab in Oxford.  Just one example how your support over the years has been put to good use!  Thank you, as always, for your ongoing support.https://wellcomeopenresearch.org/articles/2-75/v1

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