CTD Holdings Clinical Trial

13th April 2017 | 0 Comments

CTD Holding’s Trappsol Cyclodextrin trial is currently enrolling in two trial sites: Oakland, US and Manchester, UK.  The Phase 1 trial in the US requires patients to be 18+ and is looking to recruit approximately 12 patients for a research study lasting up to 20 weeks.   The Phase 1/2 trial in the UK is also looking…

Orphazyme trial update

4th April 2017 | 0 Comments

Orphazyme recently announced that its interventional trial of Arimoclomal has achieved its recruitment target. The company has recruited 46 NPC patients in 8 countries for this 12 month placebo-controlled trial. There are two centres in the UK; Great Ormand Street and Birmingham. William has been on the trial now for about 6 weeks (patients do not know…

Ball Tickets on Sale!

16th March 2017 | 0 Comments

SHAKEN NOT STIRRED BALL Saturday, 7th October 2017 GRAND CONNAUGHT ROOMS LONDON   Following great feedback from our 2012 NPRF Fundraising Ball, we have decided the time is right to get all our supporters together again for another fantastic evening of food, dancing, fizz and hopefully great fundraising for our important charity work. Tickets are…

NPRF Ball – 7th October 2017

28th February 2017 | 0 Comments

The NPRF’s second Ball is to be held on 7th Oct 2017 at the Grand Connaught Rooms, which was where we held the first ball back in 2012. Included within the £95 ticket price is a welcome drink, three course meal and a disco. Tables are for 10 people.

The Niemann-Pick Research Foundation Black Tie Ball

7th October 2012 | 0 Comments

The Niemann-Pick Research Foundation Black Tie Ball was held on 6th October 2012 at the Grand Connaught Rooms in Covent Garden, London.  Over 400 people attended, with guests travelling in from all parts of the UK including Scotland and Cornwall.  Particular mention should go to the Kreuder-Carringtons, who drove all the way from Germany!  The evening started…