Prize update: 2 nights at the Hotel Furstenhof in Lower Saxony, Germany plus dinner and a Volvo XC90 for 3 days

29th August 2017 | 0 Comments

This is a fabulous prize comprising 3 days rental of a Volvo XC90, 2 nights in a 5 star hotel and dinner for one of those nights in the hotel’s fine Italian restaurant. All you need to do is get yourself to Hannover. Hotel Furstenhof is a 5-star hotel located in Celle, to the north…

NPRF Ball: new auction prize, dinner with Berry Bros chairman, Simon Berry

24th August 2017 | 0 Comments

Dinner for 5 people with Simon Berry was a popular auction prize at our first ball. The prize consisted of dinner for 4 people plus Simon at a well-known West End restaurant. The meal was kindly donated by the restaurant with the auction winners picking up the wine bill! Representing the seventh generation of his…

NPRF approves its 15th grant

23rd August 2017 | 0 Comments

The charity and Prof Fran Platt’s lab at Oxford University signed its latest grant on 2 Aug 2017. This is the charity’s 6th grant supporting Fran’s work and its 15th overall.  In total the charity has now committed £550,000 to research into NPC, £388,000 to Oxford.  This latest grant builds on the vital infrastructure support…

They Did It! Congratulations to the Whole Platt Lab Team

5th August 2017 | 0 Comments

Despite the horrendous weather and at least one dunking that we heard about (including poor Jess the Dog!), the team of canoeists from Fran Platt’s lab in Oxford successfully negotiated their 40 mile trek from Donnington Bridge in Oxford to Tilehurst in Reading.  It’s not too late to show your support for their efforts, just…

Canoeing from Oxford to Reading for NPC charities

2nd August 2017 | 0 Comments

I hope the first day of canoeing down the Thames has been kind, the weather certainly hasn’t been!!  These wonderful scientists are putting themselves through what must be a very wet experience to raise money for NPC.  They are only just short of their target and would love your support to reach it! Thanks to…

Platt Lab to Canoe 40 miles for Charity

23rd July 2017 | 0 Comments

The Platt Lab in Oxford are not adverse to taking on a challenge; having joined us in 2014 running from Cardiff to Oxford and we are grateful to them for embarking on yet another one, raising funds for Niemann-Pick UK ( and the NPRF.  For this challenge, they are going to canoe with their families from…

2017 Ball – Entertainment

16th July 2017 | 0 Comments

We are delighted to announce that Re:Cover will be playing at the NPRF Shaken not Stirred Ball in October. To check them out, visit their Facebook page and make sure you’ve got your dancing shoes ready for some great entertainment on the night!  Tickets selling fast, make sure you don’t miss out!!

Lunch Break!

15th July 2017 | 0 Comments

They are feeling a little drained and battered as they go through the 50K mark.  As they say, only 50 1km runs to go!  If you would like to sponsor their efforts please follow the link below.  Thanks for all the texts of encouragement, we are passing them on!  

Half Way!

15th July 2017 | 0 Comments

GOOD LUCK FOR THE NEXT 50K! The Grand Old Running Men of the NPRF They had a whopping 100K to run And when they were only half way there There was 50K to be done! (Verse written by Grandad French)         

Pit Stop!

15th July 2017 | 0 Comments

Scheduled pit stop number 3!  All still alive!  Moral support turned up on bikes (thanks Al Watts) and with the provisions (thanks Rupert Casey) #RTTS2017 @RaceToTheStones