Martha Tipper Does the Tunbridge Wells Half for the NPRF

15th March 2019 | 0 Comments

Our version of Ed Sheeran’s song Photograph, played at our ball back in October 2017, included the lines: “Friendship can heal, Friendship can mend a soul and it’s the only thing we know”. William is fortunate to have so many wonderful friends, including the lovely Martha Tipper (pictured below with her mum and dad) who…

Publication of Copper Trafficking and Redistribution Research

12th March 2019 | 0 Comments

We are delighted to have been involved in part funding this research which involved scientists from 3 laboratories in the UK: Fran Platt’s lab in Oxford providing the biology, John Spencer’s lab in Sussex providing the chemistry and Philip Blower at Kings College London providing the imaging expertise. A great collaboration that has advanced our…

Universal Care pick the NPRF as their Charity for 2019

27th February 2019 | 0 Comments

A massive thank you to the staff at Universal Care for picking the NPRF as their charity for 2019. We are very grateful to them for their £5,000 sponsorship and the awareness that they are giving us this year.   We hope to soon have news about a funding project that we will use their…

Christmas Newsletter 2018

25th December 2018 | 0 Comments

Wishing everyone a very Happy Christmas. Please follow the link below to read our Christmas Newsletter 2018. Christmas 2018 Newsletter

High March School’s One Night in Venice Ball

17th October 2018 | 0 Comments

Back in July David, Sue, William and Rebecca were delighted to attend the drinks reception and help run the Heads and Tails at High March’s Summer Ball!  Rebecca spent 8 wonderful years at the school and we are so grateful for their continued support. It was a beautiful summer’s evening and the whole event was…

Scientists Cycle Oxford to Cambridge for Niemann Pick Disease

20th September 2018 | 0 Comments

Congratulations to the amazing team of scientists who have successfully completed their 70 mile cycle from Oxford to the NP UK Family Conference taking place this weekend near Cambridge. Despite the weather testing them once again this year, they have all arrived safely! Thanks to everyone who has supported them already, if you would still…

Thank You to Dropmore Infant School

21st December 2017 | 0 Comments

A big thank you to Gitta Streete and everyone at Dropmore Infant School who kindly included the NPRF at their Christmas Nativity and raised an amazing £350.00 for us.  Thank you for your support, it is, as always, much appreciated.

Belinda Mikhail’s Christmas Concert

12th December 2017 | 0 Comments

A massive thank you to Belinda Mikhail and all her very talented singers for including the NPRF at their recent Christmas Concert in St Teresa’s Church in Beaconsfield.  Despite the snow, there was still a great turn out and those who made it were treated to a fantastic concert from several groups of singers from…

A special morning spent with Chelsea FC!

23rd November 2017 | 0 Comments

William, Rebecca and I spent last Sunday morning enjoying the sunshine in Cobham and watching the Chelsea FC squad train!  We had a great time and are grateful to the Chelsea Foundation (especially Sally) for sorting it all out for us and looking after us so well.  Lots of great photos to go with the…

Fantastic evening at the NPRF’s Shaken not Stirred Ball on 7th October

23rd October 2017 | 0 Comments

On Saturday 7th October 2017, the NPRF held its 2nd Charity Ball at the Grand Connaught Rooms in London.  Over 350 guests joined us for what was a fantastic and special evening. Following a welcome drinks reception, we overcame the challenge of persuading guests to move through to dinner by enticing them to see the…