Day 2 of the Ridgeway Challenge with Ashington Page, Beaconsfield

23rd June 2019 | 0 Comments

As a small charity we are eternal grateful to everyone who organises events, raising much needed funds for the NPRF. We are also fortunate that our local community is so amazing and keep rising to various challenges helping us continue to support research. One team doing that is the team at Ashington Page in Beaconsfield…

Still time to support Tim and his ‘Race to the King’ tomorrow!

21st June 2019 | 0 Comments

Thanks to everyone who has already supported Tim with his Race to the King challenge tomorrow. William is planning on meeting Tim during the race, so watch this space for some pictures en route. Support to date has been incredible, but it’s not too late to help him surpass his target and inspire him to…

Tim Wallis’ Race to the King in aid of the NPRF

25th April 2019 | 0 Comments

On 22 June Tim Wallis, William’s godfather and an NPRF Trustee will be completing the 52 mile ultra marathon the ‘Race to the King’ in aid of the NPRF. Please check out his Virgin Giving page for more information about the event and to support him raising much needed funds to keep the hope alive…

Fundraising with Virgin Money Giving

23rd April 2019 | 0 Comments

After 8 years of using BT’s MyDonate platform for online donations, the NPRF is now using VirginMoneyGiving, with immediate effect. MyDonate is ceasing operations, which is a great shame as it was very cost effective for charities. The good news is that VirginMoneyGiving is also a not for profit organisation and its charges are lower than other…

Collaboration with Action Medical Research to support The Platt Lab

3rd April 2019 | 0 Comments

We are delighted to have joined forces with Action Medical Research (AMR) and other Niemann Pick Charities (Niemann-Pick UK, NP Suisse and Niemann-Pick de Fuenlabrada) to support Professor Frances Platt conduct a project that starts this month and will run for 24 months.  We have made a material contribution to this six-figure fund and are…

Thames Valley Research Meeting

29th March 2019 | 0 Comments

It was fantastic to meet up with other NPC charities (NP UK and NP Suisse) and a number of NPC academics on Wednesday at the Academy of Medical Sciences. Thanks to Professor Fran Platt (Platt Lab) for organising the meeting and great to discuss the latest on various research avenues including Gene Therapy; Armicolmol; Cyclodextrin;…

Martha Tipper Does the Tunbridge Wells Half for the NPRF

15th March 2019 | 0 Comments

Our version of Ed Sheeran’s song Photograph, played at our ball back in October 2017, included the lines: “Friendship can heal, Friendship can mend a soul and it’s the only thing we know”. William is fortunate to have so many wonderful friends, including the lovely Martha Tipper (pictured below with her mum and dad) who…

Publication of Copper Trafficking and Redistribution Research

12th March 2019 | 0 Comments

We are delighted to have been involved in part funding this research which involved scientists from 3 laboratories in the UK: Fran Platt’s lab in Oxford providing the biology, John Spencer’s lab in Sussex providing the chemistry and Philip Blower at Kings College London providing the imaging expertise. A great collaboration that has advanced our…

Universal Care pick the NPRF as their Charity for 2019

27th February 2019 | 0 Comments

A massive thank you to the staff at Universal Care for picking the NPRF as their charity for 2019. We are very grateful to them for their £5,000 sponsorship and the awareness that they are giving us this year.   We hope to soon have news about a funding project that we will use their…

Christmas Newsletter 2018

25th December 2018 | 0 Comments

Wishing everyone a very Happy Christmas. Please follow the link below to read our Christmas Newsletter 2018. Christmas 2018 Newsletter