Tim Wallis’ Race to the King in aid of the NPRF

25th April 2019 | 0 Comments

On 22 June Tim Wallis, William’s godfather and an NPRF Trustee will be completing the 52 mile ultra marathon the ‘Race to the King’ in aid of the NPRF. Please check out his Virgin Giving page for more information about the event and to support him raising much needed funds to keep the hope alive…

Fundraising with Virgin Money Giving

23rd April 2019 | 0 Comments

After 8 years of using BT’s MyDonate platform for online donations, the NPRF is now using VirginMoneyGiving, with immediate effect. MyDonate is ceasing operations, which is a great shame as it was very cost effective for charities. The good news is that VirginMoneyGiving is also a not for profit organisation and its charges are lower than other…

Collaboration with Action Medical Research to support The Platt Lab

3rd April 2019 | 0 Comments

We are delighted to have joined forces with Action Medical Research (AMR) and other Niemann Pick Charities (Niemann-Pick UK, NP Suisse and Niemann-Pick de Fuenlabrada) to support Professor Frances Platt conduct a project that starts this month and will run for 24 months.  We have made a material contribution to this six-figure fund and are…

Thames Valley Research Meeting

29th March 2019 | 0 Comments

It was fantastic to meet up with other NPC charities (NP UK and NP Suisse) and a number of NPC academics on Wednesday at the Academy of Medical Sciences. Thanks to Professor Fran Platt (Platt Lab) for organising the meeting and great to discuss the latest on various research avenues including Gene Therapy; Armicolmol; Cyclodextrin;…

Martha Tipper Does the Tunbridge Wells Half for the NPRF

15th March 2019 | 0 Comments

Our version of Ed Sheeran’s song Photograph, played at our ball back in October 2017, included the lines: “Friendship can heal, Friendship can mend a soul and it’s the only thing we know”. https://www.youtube.com/watch?v=5tRPZ5a8v_w William is fortunate to have so many wonderful friends, including the lovely Martha Tipper (pictured below with her mum and dad) who…

Publication of Copper Trafficking and Redistribution Research

12th March 2019 | 0 Comments

We are delighted to have been involved in part funding this research which involved scientists from 3 laboratories in the UK: Fran Platt’s lab in Oxford providing the biology, John Spencer’s lab in Sussex providing the chemistry and Philip Blower at Kings College London providing the imaging expertise. A great collaboration that has advanced our…

Universal Care pick the NPRF as their Charity for 2019

27th February 2019 | 0 Comments

A massive thank you to the staff at Universal Care for picking the NPRF as their charity for 2019. We are very grateful to them for their £5,000 sponsorship and the awareness that they are giving us this year.   We hope to soon have news about a funding project that we will use their…

Christmas Newsletter 2018

25th December 2018 | 0 Comments

Wishing everyone a very Happy Christmas. Please follow the link below to read our Christmas Newsletter 2018. Christmas 2018 Newsletter

High March School’s One Night in Venice Ball

17th October 2018 | 0 Comments

Back in July David, Sue, William and Rebecca were delighted to attend the drinks reception and help run the Heads and Tails at High March’s Summer Ball!  Rebecca spent 8 wonderful years at the school and we are so grateful for their continued support. It was a beautiful summer’s evening and the whole event was…

Scientists Cycle Oxford to Cambridge for Niemann Pick Disease

20th September 2018 | 0 Comments

Congratulations to the amazing team of scientists who have successfully completed their 70 mile cycle from Oxford to the NP UK Family Conference taking place this weekend near Cambridge. Despite the weather testing them once again this year, they have all arrived safely! Thanks to everyone who has supported them already, if you would still…