Research

NPRF Funding at De Montfort University, Leicester

A collaboration of funding between the NPRF and Ryklow Charitable Trust supported Simon Wheeler and Dan Sillence at De Montfort University, Leicester looking into the cellular pathology and pharmacotherapy in NPC disease. This successful research has resulted in a paper being published in the Journal of Neurochemistry. To read the paper, please follow the link…

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Team of Scientists take on Challenge for NPC Research

Our wonderful scientists are once again taking on a challenge to raise money for the NP UK and the NPRF. This year they are going to bike, walk and canoe their way from the Department of Pharmacology at the University of Oxford to the Niemann Pick UK family conference in Wyboston Lakes in Bedfordshire. The…

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Ashington Page Complete their Ridgeway Challenge

A massive congratulations to the Ashington Page team who finished their Ridgeway Challenge on the 1st September walking the final 25 miles from Chinnor to Ivinghoe Beacon. They’ve kindly taken on this challenge to raise funds for the NPRF and we can’t thank them enough for al their support. It’s not too late to support…

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Ashington Page Continue their Ridgeway Walk Challenge

The team at Ashington Page are back out on the Ridgeway looking to complete Day 3 of their challenge. Today’s trek will see them walk 24 miles from Streatley to Chinnor. Hopefully the weather will be kinder today! Good luck to the team and thank you to everyone who has already supported them and the…

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Day 2 of the Ridgeway Challenge with Ashington Page, Beaconsfield

As a small charity we are eternal grateful to everyone who organises events, raising much needed funds for the NPRF. We are also fortunate that our local community is so amazing and keep rising to various challenges helping us continue to support research. One team doing that is the team at Ashington Page in Beaconsfield…

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Fundraising with Virgin Money Giving

After 8 years of using BT’s MyDonate platform for online donations, the NPRF is now using VirginMoneyGiving, with immediate effect. MyDonate is ceasing operations, which is a great shame as it was very cost effective for charities. The good news is that VirginMoneyGiving is also a not for profit organisation and its charges are lower than other…

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Collaboration with Action Medical Research to support The Platt Lab

We are delighted to have joined forces with Action Medical Research (AMR) and other Niemann Pick Charities (Niemann-Pick UK, NP Suisse and Niemann-Pick de Fuenlabrada) to support Professor Frances Platt conduct a project that starts this month and will run for 24 months.  We have made a material contribution to this six-figure fund and are…

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Thames Valley Research Meeting

It was fantastic to meet up with other NPC charities (NP UK and NP Suisse) and a number of NPC academics on Wednesday at the Academy of Medical Sciences. Thanks to Professor Fran Platt (Platt Lab) for organising the meeting and great to discuss the latest on various research avenues including Gene Therapy; Armicolmol; Cyclodextrin;…

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Publication of Copper Trafficking and Redistribution Research

We are delighted to have been involved in part funding this research which involved scientists from 3 laboratories in the UK: Fran Platt’s lab in Oxford providing the biology, John Spencer’s lab in Sussex providing the chemistry and Philip Blower at Kings College London providing the imaging expertise. A great collaboration that has advanced our…

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