Research

Day 2 of the Ridgeway Challenge with Ashington Page, Beaconsfield

As a small charity we are eternal grateful to everyone who organises events, raising much needed funds for the NPRF. We are also fortunate that our local community is so amazing and keep rising to various challenges helping us continue to support research. One team doing that is the team at Ashington Page in Beaconsfield…

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Fundraising with Virgin Money Giving

After 8 years of using BT’s MyDonate platform for online donations, the NPRF is now using VirginMoneyGiving, with immediate effect. MyDonate is ceasing operations, which is a great shame as it was very cost effective for charities. The good news is that VirginMoneyGiving is also a not for profit organisation and its charges are lower than other…

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Collaboration with Action Medical Research to support The Platt Lab

We are delighted to have joined forces with Action Medical Research (AMR) and other Niemann Pick Charities (Niemann-Pick UK, NP Suisse and Niemann-Pick de Fuenlabrada) to support Professor Frances Platt conduct a project that starts this month and will run for 24 months.  We have made a material contribution to this six-figure fund and are…

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Thames Valley Research Meeting

It was fantastic to meet up with other NPC charities (NP UK and NP Suisse) and a number of NPC academics on Wednesday at the Academy of Medical Sciences. Thanks to Professor Fran Platt (Platt Lab) for organising the meeting and great to discuss the latest on various research avenues including Gene Therapy; Armicolmol; Cyclodextrin;…

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Publication of Copper Trafficking and Redistribution Research

We are delighted to have been involved in part funding this research which involved scientists from 3 laboratories in the UK: Fran Platt’s lab in Oxford providing the biology, John Spencer’s lab in Sussex providing the chemistry and Philip Blower at Kings College London providing the imaging expertise. A great collaboration that has advanced our…

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Universal Care pick the NPRF as their Charity for 2019

A massive thank you to the staff at Universal Care for picking the NPRF as their charity for 2019. We are very grateful to them for their £5,000 sponsorship and the awareness that they are giving us this year.   We hope to soon have news about a funding project that we will use their…

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High March School’s One Night in Venice Ball

Back in July David, Sue, William and Rebecca were delighted to attend the drinks reception and help run the Heads and Tails at High March’s Summer Ball!  Rebecca spent 8 wonderful years at the school and we are so grateful for their continued support. It was a beautiful summer’s evening and the whole event was…

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NPRF approves its 16th grant

The charity and Prof John Spencer’s lab at Sussex University signed its latest grant on 4 Aug 2017. This is the charity’s 2nd grant supporting John’s work and its 16th overall.  In total the charity has now committed £577,000 to research into NPC, £100,000 to Sussex. The grant is to support John’s work looking to…

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They Did It! Coast-2-Coast Success!

Congratulations to Rob Trophy and the team for completing their Coast-2-Coast challenge at the weekend.  To quote Rob – “It was amazing and brutal in equal measure!” It’s not too late to support them, just follow this link!  https://mydonate.bt.com/fundraisers/coasttocoastfornprf Thanks to the whole team for taking on this challenge and raising research funds and awareness…

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Ursodeoxycholic acid treatment in NPC

This is one of the drugs that William has been on for several years now following research that the NPRF funded through the Platt Lab in Oxford.  Just one example how your support over the years has been put to good use!  Thank you, as always, for your ongoing support.https://wellcomeopenresearch.org/articles/2-75/v1

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