Research
Ashington Page Continue their Ridgeway Walk Challenge
The team at Ashington Page are back out on the Ridgeway looking to complete Day 3 of their challenge. Today’s trek will see them walk 24 miles from Streatley to Chinnor. Hopefully the weather will be kinder today! Good luck to the team and thank you to everyone who has already supported them and the…
Read MoreDay 2 of the Ridgeway Challenge with Ashington Page, Beaconsfield
As a small charity we are eternal grateful to everyone who organises events, raising much needed funds for the NPRF. We are also fortunate that our local community is so amazing and keep rising to various challenges helping us continue to support research. One team doing that is the team at Ashington Page in Beaconsfield…
Read MoreFundraising with Virgin Money Giving
After 8 years of using BT’s MyDonate platform for online donations, the NPRF is now using VirginMoneyGiving, with immediate effect. MyDonate is ceasing operations, which is a great shame as it was very cost effective for charities. The good news is that VirginMoneyGiving is also a not for profit organisation and its charges are lower than other…
Read MoreCollaboration with Action Medical Research to support The Platt Lab
We are delighted to have joined forces with Action Medical Research (AMR) and other Niemann Pick Charities (Niemann-Pick UK, NP Suisse and Niemann-Pick de Fuenlabrada) to support Professor Frances Platt conduct a project that starts this month and will run for 24 months. We have made a material contribution to this six-figure fund and are…
Read MoreThames Valley Research Meeting
It was fantastic to meet up with other NPC charities (NP UK and NP Suisse) and a number of NPC academics on Wednesday at the Academy of Medical Sciences. Thanks to Professor Fran Platt (Platt Lab) for organising the meeting and great to discuss the latest on various research avenues including Gene Therapy; Armicolmol; Cyclodextrin;…
Read MorePublication of Copper Trafficking and Redistribution Research
We are delighted to have been involved in part funding this research which involved scientists from 3 laboratories in the UK: Fran Platt’s lab in Oxford providing the biology, John Spencer’s lab in Sussex providing the chemistry and Philip Blower at Kings College London providing the imaging expertise. A great collaboration that has advanced our…
Read MoreUniversal Care pick the NPRF as their Charity for 2019
A massive thank you to the staff at Universal Care for picking the NPRF as their charity for 2019. We are very grateful to them for their £5,000 sponsorship and the awareness that they are giving us this year. We hope to soon have news about a funding project that we will use their…
Read MoreHigh March School’s One Night in Venice Ball
Back in July David, Sue, William and Rebecca were delighted to attend the drinks reception and help run the Heads and Tails at High March’s Summer Ball! Rebecca spent 8 wonderful years at the school and we are so grateful for their continued support. It was a beautiful summer’s evening and the whole event was…
Read MoreNPRF approves its 16th grant
The charity and Prof John Spencer’s lab at Sussex University signed its latest grant on 4 Aug 2017. This is the charity’s 2nd grant supporting John’s work and its 16th overall. In total the charity has now committed £577,000 to research into NPC, £100,000 to Sussex. The grant is to support John’s work looking to…
Read MoreThey Did It! Coast-2-Coast Success!
Congratulations to Rob Trophy and the team for completing their Coast-2-Coast challenge at the weekend. To quote Rob – “It was amazing and brutal in equal measure!” It’s not too late to support them, just follow this link! https://mydonate.bt.com/fundraisers/coasttocoastfornprf Thanks to the whole team for taking on this challenge and raising research funds and awareness…
Read More