Board of Trustees

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Jeremy Tipper is a long time supporter of the research effort into NPC. By running marathons with his wife, Helen, they have raised over £15,000 for Niemann-Pick charities. Jeremy has a BSc in Banking & Finance and has set up and run two businesses in the recruitment industry and is currently with Alexander Mann Solutions.

He loves sport, particularly cricket which he plays and watches whenever he is not acting as a taxi service for his children's own sporting endeavours.

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Ann O’Neill met Sue and Dave at Loughborough University.  Ann started work at Capital Radio in the early '90's and spent 4 years in Sponsorship and Promotions and then later the Marketing and Programming Division where she was responsible for Marketing Operations, Brand Development,  Partnerships,  Events, Press, Pr, Social Action and Charity. Her last role before leaving to have a baby,  was to work with Bob Geldoff on Live8 on behalf of the whole UK radio network.

Tim Wallis is one of William’s godparents and has known the family for over 25 years. Tim is a keen sportsman and supported both golf days organising several fourballs. Tim also took part with David in the Cardiff to Oxford run, completing the whole distance.

Steve Nagle joined the board in 2015 having been a consistent supporter of the charity over many years.  Steve’s son George was one of William’s earliest friends having been in the same NCT group.  Steve was the driver supporting both the LEJOG cycle ride and the Cardiff to Oxford runs.

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Geneviève Roy has known William’s parents David and Sue for nearly 20 years.  She started her career as a lawyer and left the practice of law in 2001 to start a family.  Her son Paul was born a few weeks before William while her daughter Caroline arrived in 2002.  Geneviève has been the Finance Officer at St Osmund's Catholic Primary School in London since 2007.   Geneviève enjoys spending time in her native Canada with her family and her interests include running, cycling and skiing.

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Fiona Benzecry has developed her understanding of NPC through knowing Sue, David and William for over a decade.  She has twin daughters who have been friends with William all this time.  Fiona worked for a Major Oil Company for 17 years running Business Strategy, Dealer Franchise and IT for the UK over this period.  Amongst other things she now volunteers for Young Enterprise.  She has BSC in Computer Science from Aberdeen University.

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Sue French’s son William, was diagnosed with NPC in 2002. She has a specific interest in trials and research for NPC.  She is also the main contact for the charity and deals with all the administrative aspects and communication. Alongside her charity work, Sue enjoys spending time with William. who  has been home schooled since 2008, when a suitable local school to meet his complex health and educational needs couldn't be found.  She is also mum to Rebecca, twelve. Sue graduated from Loughborough University  in 1990.  In her spare time she  likes to play golf and relax with family and friends.

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David French is father to William, who is fifteen years old and Rebecca who is twelve.  William was diagnosed with NPC when he was nine months old.

David took up cycling to take part in the charity’s first fund raiser, a Land’s End to John O’Groats bike challenge and then running to take part in a charity run from Cardiff to Oxford, to celebrate the charity’s two most important research collaborations. He also looks after the charity’s accounting, Charity Commission reporting and website.