Archive for April 2019

Tim Wallis’ Race to the King in aid of the NPRF

On 22 June Tim Wallis, William’s godfather and an NPRF Trustee will be completing the 52 mile ultra marathon the ‘Race to the King’ in aid of the NPRF. Please check out his Virgin Giving page for more information about the event and to support him raising much needed funds to keep the hope alive…

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Fundraising with Virgin Money Giving

After 8 years of using BT’s MyDonate platform for online donations, the NPRF is now using VirginMoneyGiving, with immediate effect. MyDonate is ceasing operations, which is a great shame as it was very cost effective for charities. The good news is that VirginMoneyGiving is also a not for profit organisation and its charges are lower than other…

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Collaboration with Action Medical Research to support The Platt Lab

We are delighted to have joined forces with Action Medical Research (AMR) and other Niemann Pick Charities (Niemann-Pick UK, NP Suisse and Niemann-Pick de Fuenlabrada) to support Professor Frances Platt conduct a project that starts this month and will run for 24 months.  We have made a material contribution to this six-figure fund and are…

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