Niemann-Pick Research Foundation, 44 Ledborough Lane, Beaconsfield, Buckinghamshire, HP9 2DD.  Registered charity number 1141036

So if you want to help make a difference to a rare disease, and want

nearly all the money you raise to go to making that difference, why not support us  

We keep overheads to a minimum.

Net fundraising in 2012 was £146,000, overheads were £1,180.

There is promising research being undertaken, but this needs to be translated into therapeutic treatments. That costs money.  

The NPRF raises money to invest in research and in funding

trials of therapies to help treat this devastating condition.  

     Niemann Pick C is a very rare, terminal, neurodegenerative disease.  

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We’ve produced a small leaflet to say a little about the charity, click here to view it. You should be able to donload or print it from your browser.

Sole Mates Walking For William is a group of 10 friends from Beaconsfield who are walking 42 miles in a day on 22nd June.