Niemann-
So if you want to help make a difference to a rare disease, and want
nearly all the money you raise to go to making that difference, why not support us
We keep overheads to a minimum.
Net fundraising in 2011 was £184,000, overheads were £866.
There is promising research being undertaken, but this needs to be translated into therapeutic treatments. That costs money.
The NPRF raises money to invest in research and in funding
trials of therapies to help treat this devastating condition.
Niemann Pick C is a very rare, terminal, neurodegenerative disease.
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The Niemann-
6th October 2012
The Great Hall,
Grand Connaught Rooms,
Covent Garden