Niemann-Pick Research Foundation, 44 Ledborough Lane, Beaconsfield, Buckinghamshire, HP9 2DD. Registered charity number 1141036
Niemann Pick C is a very rare, terminal, neurodegenerative disease.
The NPRF raises money to invest in research and in funding
trials of therapies to help treat this devastating condition.
There is promising research being undertaken, but this needs to be translated into therapeutic treatments. That costs money.
We keep overheads to a minimum.
Net fundraising in 2015 was £122,700, overheads were about a £1,000.
So if you want to help make a difference to a rare disease, and want nearly all the money you raise to go to making that difference, why not support us.
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NPRF awards 5th infrastructure grant to Pr Fran Platt’s lab at Oxford University.